Wednesday, September 20, 2006

Paula’s Press Release Volume V

there has been much sorrow and loss of late, though some has been accompanied by the privilege of reflection and sharing. i owe an entry about Grandma's memorial service, i know, but for now i delight in presenting some good news. attached please find Paula's most recent 'release.' for those who may not know, Paula is my 30-year old cousin diagnosed this last Christmas eve with an inoperable brain tumor...




Celebrate Life pin
Originally uploaded by jacquichris.
I can see clearly now, the rain is gone,
I can see all obstacles in my way
Gone are the dark clouds that had me blind
It’s gonna be a bright (bright), bright (bright)
Sun-Shiny day.

I think I can make it now, the pain is gone
All of the bad feelings have disappeared
Here is the rainbow I’ve been prayin’ for
It’s gonna be a bright (bright), bright (bright)
Sun-Shiny day.

Look all around, there’s nothin’ but blue skies
Look straight ahead, nothin’ but blue skies

I can see clearly now, the rain is gone,
I can see all obstacles in my way
Gone are the dark clouds that had me blind
It’s gonna be a bright (bright), bright (bright)
Sun-Shiny day.
(Johnny Nash: I can see clearly now)

Normally, I have religious type songs popping into my mind at critical points in my life these days. Today, it was Johnny Nash’s Bright Sun-Shiny Day that jumped into my mind while driving home from Mayo Clinic’s Gonda Building. I take my last chemo pills tonight @ 10 pm. This will end my final round of chemotherapy, and will be the end of any scheduled treatments for my well-attended to tumor.

Throughout my treatment, I have had many obstacles. I was unable to drive from January through July. The Mayo Clinic computer server went down my second day of radiation and I had to wait over one hour to finish the treatment. I had nausea and vomiting throughout my chemotherapy, although the doctors had assured me prior to taking the medication that I probably would have no side effects. I had a bought with serious depression in May (nothing new, but never fun). My medical insurance was cut through my workplace (luckily I had Pat’s insurance coverage to back mine up). I had chemo-related anemia. I had an anaphylactic reaction to IV iron. I had to go through 4+ hours of mental testing to be sure my brain was functioning correctly (it is, by the way). I did, however, get diagnosed with ADD/ADHD tendencies (surprise, I know). Pat found out he has sleep apnea and was getting 0% REM or deep sleep. My computer was in for service more than it was available for my use at home. Pat returned to coaching football and teaching math (football takes him to Rochester for practices and meetings 7 days a week). I had a “negative encounter” with a friend’s dog. Oh yeah, I also was blessed with the stomach flu last week.

Although there were obstacles, there were many sun-shiny days as well. I have made so many new friends, found out so much more about myself, my husband, and my children than I ever thought I could. I have also learned that I need to take time for myself and to do things just for me. I have become a true Christian, believing that there is a higher power guiding our every step here on Earth. With typing the last sentence, another song has barged into my brain. It is the song “Earth and All Stars” (p. 558, Lutheran Book of Worship, Augsburg Publishing House, Mpls). I won’t type all of the lyrics, just the refrain, which says, “He has done marvelous things, I too will praise him with a new song”.

The picture of the pin at the beginning of this note is what I received from Mayo today, signifying the end of my chemotherapy. Dr. Buckner mentioned last week that patients receiving IV chemo get a pin when they complete their treatment. I said “Where’s my pin? I want a pin.” He said “I shouldn’t have said anything”. So today, I marched right on up to the chemotherapy unit desk and said “I want my freaking pin”. Not really, just kidding. I did go up to the desk today, but I asked quite politely if I could possibly have a pin since I was finishing chemo tonight. They graciously brought one out and placed it in my hand. I cried. I haven’t been able to set it down or let it out of my sight since I received it this morning. What a blessing to have made it this far and still be as spunky as I always have been. I really am seeing clearly now.

I will continue to have MRI’s and blood tests every 3 months for three years. As far as anyone can say, there shouldn’t be any tumor growth that will need attention for many years. Please pray for this to be true.

You haven’t heard the last from me yet, I’ll continue to send updates every once in a while. And PLEASE, continue to send me your updates as well.

My love to you all,

Paula

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